How to support somebody living with dementia in hot weather (2023)

Michael McGrath

22 June 2023 at 10:38 pm

I would love one day a week rest bite to look after Elizabeth who is mobile but sometimes confused, she was diagnosed with Alzheimer's dementia mixed in April 2019 and have a tendency to ramble but is easy to get on with, should there be anything out there, donation or payment is no problem.Love to hear from you

Paul Anthony

20 June 2023 at 6:21 pm

I'd recommend ice cream. It was also suggested to me by a consultant as a cheap alternative to protein drinks.

Robert Claydon

19 July 2022 at 7:00 pm

My wife was diagnosed with PCA post cortical atrophy a year ago. She never instigates conversation as well as putting tea bags in the kettle to make tea and often can’t remember her adult children’s names. Her memory is bad but when told claims she remembers. She has retained her practical skills such as badminton and is mobile. She is 69. Anyone any advice on the likely progression of this condition?

21 July 2022 at 10:01 am

Hi Robert, it sounds like you might benefit from joining our online community, Talking Point.

Talking Point is the ideal place for carers and other people affected by dementia to share their personal experiences, and offer advice and support to others going through similar situations. You can browse the conversations within the community or sign up for free:

We'd also recommend speaking with one of our dementia advisers who can listen to your wife's situation and provide advice and support. Please call our Dementia Connect support line on 0333 150 3456. (More information on opening times:

In the meantime, we have some information about the progression and stages of dementia:

We hope this helps for now, Robert.

Alzheimer's Society blog team

Michelle St Louis

07 August 2021 at 6:12 pm

This is a very helpful website. My husband has been diagnosed with dementia and it is becoming very challenging for me. He repeats himself over and over and though on meds, has become totally dependent on me. So appreciate hearing from others.

Leila Rutherford

08 July 2022 at 7:14 pm

Michelle I work with many dementia patients and you can always come to me if you need someone to lean on. Being so close must be so very hard. Please reach out if you need support xx


23 July 2021 at 7:54 am

My parents used to live miles away from me. my Mother was the main carer who looked after my dad who has alzhheimers/dementia. When mum became ill they both moved in with me. Mum died 3 months later with lung cancer which the nurse missed. dad is now with me, Im having tobe a quick learner but it is so hard at times mentally exhausting and frustrating. Lockdown didnt make it any easier. It feels like i am now the parent of my dad. This disease takes eveything away not just for my dad but as a carer as well. Dad cant be left on his own so I am with him 24/7. My partner does help but he finds it hard for himself but he has work that takes him out of the situation. I work from home but its very difficult to look after dad and carry on looking after the house and my job together with my dad. My head at times feels like it just wants to explode. Every day the same old questions day in day out. I love my dad but i now look at him and think your in there somewhere. I will keep him with me for as long as i can. I hear so many bad things about homes, so i just carry on.

23 July 2021 at 9:40 am

Hello Kym, thanks for getting in touch.

We're really sorry to hear about the loss of your mum. It sounds like you're dealing with so much right now. It must be very challenging.

We would strongly recommend calling our Dementia Connect support line on 0333 150 3456. You'll be able to speak with one of our dementia advisers who will listen to your situation and offer specific advice, information, and support. You can also ask any questions you might have about care homes.

You can find more details about the support line (including opening hours) here:

There's also our online community, Talking Point, where you can talk with other people affected by dementia who may be going through a similar situation to you:…

In the meantime, you might also like to read through our information on when's the right time for a care home. It's a factsheet that explains what might need to happen in these situations. It also talks about some of the feelings you might have when the person with dementia moves into a care home, such as relief, loss or guilt:…

We also have a booklet called Selecting and moving into a care home, which you can download as a digital file or order in print to come through post:…

We hope this helps for now, Kym. Please do call our support line for advice when you need it.

Alzheimer's Society blog team

Siobhan Elliot

08 July 2022 at 7:14 pm

I really feel for you, Kym. There are some terrific residential homes out there, and I know this because I work in one of them. This is just one option, and I see you’ve had some great resources shared here. It’s really important to get a balance so that your needs are also met. Wishing you all the best.

15 July 2022 at 10:53 am

This is lovely to read, Siobhan - thank you for sharing.

Would you be interested in writing your own blog post, or maybe having a conversation with someone at the Society, so we can share your experiences of working within a terrific care home with people living with dementia?

Let us know at[emailprotected]- we can answer any questions you may have.

We reallyhope to hear from you soon!

Leila Rutherford

08 July 2022 at 7:16 pm

Hi Kym
I work in a specialist dementia unit and we treat our residents like family. Please remember that help is out there especially for you. Your happiness is also important. If you ever need to talk please do not hesitate to get in touch x

15 July 2022 at 10:51 am

Hi Leila, thank you so much for sharing this.

We'd love to hear more about what it's like working within your specialist dementia unit. Perhaps you'd be interested in writing your own blog post, or maybe having a conversation with someone at the Society to capture your story?

Let us know at[emailprotected]- we can answer any questions you may have.

We reallyhope to hear from you soon!


15 July 2022 at 9:44 am

Hey, I work in a care home and I can assure you we love our residents. My home is a small 22 bed private home. When you spend most of your life at work, the residents become more like a family than a job. I wouldn't change my career for all the money in the world. Lots of places offer daily respite or longer if you need it. Reach out, there's a lot of help out there xx

15 July 2022 at 10:49 am

Thanks for your comment, Shani. It's great to read this.

We'd love to hear more about your experiences working in a care home. Would you be interested in writing your own blog post, or perhaps a conversation with someone at the Society so we can capture your story?

Let us know at bl[emailprotected] - we can answer any questions you may have.

We reallyhope to hear from you soon!

joanna thomas

20 July 2021 at 5:19 pm

dementia and alzheimers are very difficult for the carer my late husband had the condition . the one thing i learnt you can not do it alone you need a support network and looking after yourself is so essential have a support group you can share your problems with often you help each other dont underestimate the gift of sharing and having help you must have time to yourself to recharge your batteries having friends to let of steam and use the help line to talk


20 July 2021 at 11:30 pm

I agree. Always been so independent and now feel unashamed in asking for support. thank you

Jenifer Bullock

21 July 2021 at 1:37 pm

You are definitely right. My mum has dementia and lives with me. We have no other family and it is extremely hard taking on the whole burden. We have good neighbours but I can’t bring myself to ask them for help because I’m frightened they would think I was a nuisance. I am going to possibly utilise a sitting service but mum doesn’t know she has Dementia and wouldn’t take lightly to having a stranger in the house. It’s very difficult. It has been a bit better now we can go out more often. During the lockdown it was horrible. Mum deteriorated rapidly as she’d been used to popping into town on her own every day. She’s unable to do this now. I have to be with her. I love her to pieces but you do still need a break.

joanna thomas

21 July 2021 at 3:00 pm

hi jennifer you are the pin king in your mothers care so it is important to keep well if you fall ill what would happen to your mum . many years ago i had similar situation with my late husband . i approached my g p and shared everthing and he spoke to my husband explaining that i needed a small break so he could continue in his own home often it comes better from the doctor i wish you well and the more we share our problems we can help each other . we all need back up .


19 July 2021 at 10:01 pm

My Father has vascular dementia. I absolutely hate it. It’s a disgusting, cruel waste of human life. Truly, I would not wish it on my worst enemy. It breaks heats and minds and is never ending in its wake to increase misery with every waking hour, it seems. However, we must never, ever, ever lose hope because sometimes that’s all we have left. Don’t let dementia take that away from you as well. There may be a cure one day…we cannot say there won’t be. For us now, living with it, we must help each other to get through each day, shoulder to shoulder. We are a community of sufferers who go on each day, silently grieving and stumbling along. Yes, I hate dementia but I love my Dad.

Pam Johnson

20 July 2021 at 8:26 pm

Ah Yvonne, I feel your pain and, yes, it is a dreadful disease which robs us as well as our loved ones of life. It is impossible to describe to those who do not know a sufferer the frustration, sadness , irritation and exasperation that we feel. Take care and find every way you can to relieve your own stress .

Jenny Yates

20 July 2021 at 8:33 pm

My husband has vascular demntia, he is now 90yrs, was diagnosed 12 yes ago. He went into a rest home in march, very sad and upsetting. I am able to visit him. Yes Yvonne I agree with u. Bless u my thoughts r with u. X

Jenifer Bullock

21 July 2021 at 1:40 pm

Very true. My mum has mixed Dementia and lives with me. Some days I don’t recognise the person she once was. I feel like I’m in a living nightmare. Don’t even have an other family to share the burden.

Margaret Shannon

14 July 2022 at 10:43 am

Hi Jennifer. I can totally relate to your feelings. My husband Vic had mixed dementia. Some days are so difficult, I only get a yes or no as conversation is sometimes none excistant . I find myself having to do everything which I also sometimes find very difficult with my own health issues. . I also get very concerned about the future. Take care of yourselfs. Margaret.

joanna thomas

21 July 2021 at 3:07 pm

you are so right we must become a support network for each other keep sharing your story i keep doing this even though for me its in the past take care of yourself yvonne

Marcia Doolan

21 July 2021 at 9:12 pm

I'm so sorry for what you are going through. My mom has the same. She changed very slightly for the past 10 years until i couldn't take care of her due to her aggression and just not being able to find proper help or family support. She's in a memory care unit and finally doing well. It took me awhile and a visit to the hospital for exhaustion after she was safe.

R A lake

24 July 2019 at 10:45 pm

I would to say yes it is a slow process but the government can make it better for people that have it ie make depts understand it better and be against the people that have it and make better for there familys that have put up with it it's bad enough when someone you love have it and you see them go down bit bay bit and have to pay for there rest of there life what life they may left.


23 July 2019 at 6:12 pm

A quiet pedestal fan can make a big difference in hot weather.

Sofiane Bounoua

28 June 2019 at 12:26 pm

A heatwave can lead to a vicious cycle. People with dementia may forget to drink enough fluids and wear suitable clothing. Dehydration and high body temperatures can lead to greater confusion.

As temperatures rise, we are urging relatives, carers and others to check in on people with dementia to make sure they are OK. Stay hydrated by drinking plenty of water, eat regularly to replace salts, dress in cool, light clothes and stay out of the heat.

Lots of love from Ashridge Home Care


20 June 2019 at 1:02 pm

I'm sure this has been considered but the "Jelly Drops" look rather large. I worry about the risk of it getting stuck in the throat, unless it just dissolves when it enters the mouth.

Diane Rumrill-Hall

01 November 2018 at 4:10 pm

I just saw on Facebook that there is a new jelly pop that is being tested in England that would help in dehydration. They are colorful, room temperature and sound very useful.


17 August 2018 at 6:45 pm

My mother has dementia and I have found that giving her C b d caps every day has helped her no end I have also changed her diet slightly so she has plenty of fruit and veg, no cheese or white bread and included walnuts into her diet as well as organic extra virgin olive oil.
Hope this may be of some help to someone else.

Olive silva

14 August 2020 at 8:44 am

Is there a particular reason for avoiding both bread and cheese other that calorie management?

Andrea Williams

20 July 2018 at 7:19 pm

My husband has Parkinson's and dementia. He is getting steady worse over the last 6month, some days it's a battle of wills , and he can say some hurtful thìngs .he crys and ask where mam is, my mother died 5years ago ..he keeps going on about when are we moving , and has many hallucinations.,of which he talks away to them. And gets nasty because I cannot understand him most of the time.he also sleeps a lot.. l have too cut up his food and sometimes feed him..but he is still my husband , and he can have a few realistic moment's. Especially when he sees family..where this is going I have no idea , just live day to day ...


11 July 2018 at 1:19 pm

My father got it, and I want to help him and the people who suffers it. Is so hard for me. I just have my self to support you in your activities or task. Some times I feel lonely in this situation .
Thank you for read me

Alzheimer's Society

12 July 2018 at 12:36 pm

Hi Adriana

We are sorry to hear about your father and can see how difficult it is for you caring for him on your own.

There may be local Alzheimer’s Society services nearby that can offer face-to-face help, advice and support. It may provide a chance to meet other families caring for someone. Details can be found at:…

Alternatively, our online community may be able to provide you with some support - find out more about Talking Point and share experiences with other people also affected by dementia:…

We would suggest that you call our helpline so we can offer you some further ideas on help and support that you may be entitled to. The National Dementia Helpline is open Monday to Wednesday from 9am to 8pm, Thursday and Friday from 9am to 5pm; Saturday to Sunday from 10am to 4pm. Please call 0300 222 1122.

We hope this is helpful, Adriana.

joanna thomas

21 July 2021 at 3:18 pm

this is really helpful advise the support line espially when you can speak to a human voice and support group in your area hopfully these groups will open up more

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